This episode of The Daily revisits the story of Diane Norelius, a woman whose life was drastically altered by dementia. Initially depicted as the contented heart of a close-knit family, Diane's personality and relationships underwent a profound transformation as her Alzheimer's disease progressed.
The summary examines the ethical dilemma faced by Diane's family, as they grappled with whether to honor her current desires and perceptions or her past wishes and identity. It explores the complex question of determining the "true self" when cognitive decline reshapes an individual's personality over time. Diane's case highlights the legal and personal challenges surrounding dementia care and the balance between self-determination and protection.
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Diane Norelius was the heart of her happy family, managing the household while her husband Bill worked, as Kris Norelius recalls. She was confident, involved in the community, and content as a 1950s housewife. Diane's life centered around supporting Bill and their three children.
After Bill's death in 2011, Diane experienced significant losses, including her son Eric's passing. Her personality transformed as dementia set in - she became aggressive and unkempt, as Juli Norelius observed. Diane was ultimately diagnosed with late-stage Alzheimer's.
Diane's daughters, Chris and Julie, grew concerned about a man named Denzel's increasing influence over their mother, who had added him to her bank accounts. The daughters sought legal guardianship to protect Diane, but she rejected them, insisting she loved Denzel.
As Katie Engelhart explains, the court had to balance Diane's current desires with her prior wishes and cognitive abilities. Her daughters argued for honoring Diane's long-standing instructions, while Denzel pushed for respecting her present self's preferences. Engelhart highlights the lack of consensus on which 'self' to prioritize when dementia alters an individual's identity over time.
1-Page Summary
Diane Norelius is remembered warmly for her role and personality before dementia impacted her life.
Diane Norelius was the heart and soul of her family, providing a stable and nurturing environment for her children. Kris Norelius fondly recalls how Diane managed the household while her husband, Bill, was often working. She was the one who ensured that everything ran smoothly at home, allowing her children to enjoy a wonderful childhood.
Diane's confidence and active participation in community life made her a significant presence beyond her family. Kris highlights Diane's involvement in various community roles, including serving on the school board, driving a school bus, and being a member on the state library board. Her engagement in these activities demonstrated her commitment to her local community and her joy in fulfilling the traditional role of a housewife in the 19 ...
Diane Norelius' life and personality before the onset of dementia
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Diane's life underwent dramatic changes following her husband Bill's death in 2011, which affected her behavior and relationships due to the onset of dementia.
Diane suffered compounded losses, including the death of her son, Eric, to cancer, which took away her only son and one of her supportive children. Her daughter Julie, who lived next door, also moved to Colorado after getting divorced. These events left Diane feeling alone.
Juli Norelius noticed a stark transformation in Diane's behavior; the once joyful and joyous woman grew sour and began to behave aggressively and meanly towards people. Around this time, Diane, recognizing her mind was faltering, began rearranging her affairs, striving to be her own person and make her own decisions.
The changes in Diane extended further as she exhibited physical aggression; during a car ride, she became upset and cla ...
The progression of Diane's dementia and the changes in her behavior and relationships
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A complex and heart-wrenching situation unfolds as Diane's cognitive decline places her at the center of a dispute between her two daughters and a man named Denzel over her care and autonomy.
Chris and Julie Norelius began to worry about their mother Diane's wellbeing and her increasingly restricted accessibility. Denzel seemed to be coaching Diane during their less frequent phone conversations. The daughters felt a sense of gradual isolation from their mother.
Denzel was added to Diane's bank accounts and granted financial power of attorney. Diane also redrafted her will to give Denzel the right to live on her property after her death, and she dissolved her financial trust, which Julie had managed, with large cash withdrawals causing further concerns.
Michael Barbaro discusses the implications of Diane's dementia diagnosis and her actions, like giving Denzel power of attorney. Meanwhile, Katie Engelhart points out that Diane’s daughters only realized the extent of their mother’s impairment after being concealed from them.
Denzil Nelson believed Chris and Julie sought to control Diane's life, whereas Chris was especially concerned about Denzel living in the house she still associated with her late father.
Julie reminisces about how Denzel, once her father-in-law, became a significant part of her mother’s life after Diane's support group had seemingly abandoned her. Denzel appeared as a rough-around-the-edges cowboy figure, quite a contrast to Diane's late husband.
Denzel expressed surprise upon learning that Diane’s financial matters, including her social security check, were managed by Julie through a trust. Diane also spoke about wanting to handle her own money and be her own person before dying. Yet, the intense conflict led to a restraining order against Denzel, prohibiting further actions of elder abuse.
Despite the legal turmoil, Diane insisted she loved Denzel and wanted nothing further to do with her daughters. After the removal of Denzel from the home, Diane repeatedly asked fo ...
The conflict between Diane's family members (her daughters and Denzel) over her care and decision-making abilities
As Diane’s dementia progresses, the legal system grapples with the challenging task of balancing her current expressed desires against her historical wishes and her cognitive abilities.
The court is faced with a difficult decision: what Diane really wants—what she is saying she wants now, or what she stated consistently for years before her cognitive decline. The guardianship trial for Diane has sparked intense debate over which version of Diane should be granted precedence. The court's approach acknowledges the complexities involved in preserving autonomy for dementia patients. It involves considering the patient's current statements in relation to their past expressed wishes, in light of the fact that a dementia diagnosis does not automatically strip someone of all decision-making capabilities as it might have in the past.
Katie Engelhart clarifies that the diagnosis of dementia does not automatically render a person incapable of making all decisions. She articulates that it is a gradual process, where the capacity for decision-making can diminish over time. The court, recognizing this nuanced progression, has decided to appoint a guardian who is neither Diane's daughters nor Denzel, but instead a third party. Engelhart notes the inherent difficulty in deciding when a person with dementia no longer has the ability or legal right to make decisions for themselves and that there's no distinct threshold for this.
Diane's daughters, Chris and Julie, have argued that they should care for their mother based on her long-standing instructions in case she ever developed dementia. Denzel, on the other hand, has argued that the current expressions of Diane should be taken as most significant, even if they conflict with her earlier stated desires.
This guardianship trial turns into a philosophical debate about which version of Diane should be listened to, highlighting the issue of maintaining autonomy in the face of mental deterioration. The daughters are committed to fulfilling the wishes expressed by Diane before her decline, while Denzel believes in prioritizing the present wishes of Diane, as she currently expresses love and a seeming clearness of ...
The legal and ethical questions surrounding Diane's autonomy and the right to make her own choices as her dementia advances
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